The 401 project
The 401 project
The 401 project
The 401 project
The 401 project

Newly Diagnosed

Newly Diagnosed

The first time you hear the words “your child has MECP2 Duplication Syndrome”, is terrifying, he…

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How to help

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Resources

                        All donations to…

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Testimonials

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For Charlie

For Charlie… Charlie was born June 6, 2011 and was a fantastic infant. He was a great eater, a…

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Research Projects

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Research Projects

2013 Pharmaceutic Screen: Dr. Huda Zoghbi, Baylor College of Medicine Partially Funded, $367,oo0 rem…

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Events

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2012 Events

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