Wyatt was born June 24,2007. He was crawling, walking with a walker, and self feeding at 2 1/2 years old with much therapy. Unfortunately at 3 1/2 yeas old he started having atonic drop seizures daily lasting up to 45 minutes. He lost all abilities to crawl, walk, sit up, eat, drink, hold up his own head, and even laugh or smile over the next 9 months. A GJ tube was placed for his nutrition. In 2012 after 7 ICU stays for pneumonia related illnesses my husband and I made the grueling decision for elective tracheostomy surgery. Until this point, the only way to get the life threatening mucus from his chest was running a suction catheter either up his nose or down his throat to his trachea. The "trach" has been a blessing for his daily comfort and increased his quality and quite possibly his quantity of life. Today he continues to have upwards of 10 tonic seizures daily even with 3 anticonvulsants on board. He endured 15 unsuccessful IV attempts during his most recent 11 day ICU stay for RSV.
Wyatt truly is a fighting warrior and God's son of strength. He has more patience than most adults, tolerates much more than a child should have to, and yet is content with his life. He loves school and thrives with socialization. Outdoors in the breeze is a real pleasure. He spends family time snuggling with mom, watching hunting shows with dad, or reading with brother Max. He goes where his family goes whether to brother's baseball games, the movies, or on a summer vacation.
It is a race against the clock - keeping Wyatt healthy and happy until the reversal is approved for children. Our hopes are high while we pray for perseverance and patience. We love you Wyatt!!