Gavin was diagnosed with Mecp2 duplication syndrome in July of 2015.
The day I found out changed my life forever. I always knew something was wrong and I searched to find an answer with little to no help from doctors. I thought once it had a name I would feel relief. But it was quite the opposite. It has taken me this long to really start talking about Mecp2 and its still very painful. Gavin along with his brothers and sisters with this condition go through so much on a daily basis. They are true super heros battling a dangerous fight. Knowing that there can be a cure for this gives so much hope to me and other parents.
This CAN be fixed!
Help us fund the cure for our precious ones!