Our daughter Romy, one of the girls with MECP2 duplication syndrome, just about to turn thirteen.
We are so happy to celebrate her birthday, but fear the fact that it might be her last…
We are willing to do everything, to give her back happiness and laughter, but we can’t do it alone!!
Due to low bone density, she had several fractures in her legs and spine last year, causing her a lot of
pain and not being able to sit up for more than 20 minutes anymore.
Please help us, and make life joyful again for Romy and all the other children fighting this devastating
All donations to the Rett Syndrome Research Trust are tax deductible.
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Please click here to donate via the Rett Syndrome Research Trust Mecp2 Duplication Fund Website: